2016 Holiday Party is Coming!

We had an amazing Thanksgiving party.   Nearly 80 people came to the party and we had so much awesome homemade foods.   That’s the most delicious kind of food!    And kids and lots of good chats and discussions.

Now, 2016 Holiday party is coming.  It will be on December 10 from 11 a.m. to 3 p.m.  We will have pizza and fun activities.   For desserts, please bring your favorite Holiday recipe.  We want to taste your awesome cookies, cakes, etc.    And we will have a fun contest with the desserts.

It is so much fun when we all contribute together.   You are all making 2016 such a wonderful success.

And Santa knows this and… shh…  Santa will be there with gifts!  So, you better be good!

Please notify secretary@chicagodeafblind.org to let us know if you are coming.   As always, we also need volunteer SSP and interpreters. But we promise, this will be a light event.  Its more about fun and relaxation!

When: December 10, 2016 from 11:00 to 3:00

Where:  Chicago Lighthouse, 1850 W. Roosevelt Road, Chicago

A Day of Healing

As you all know, America has elected a new President.  For man of us in the disability rights community and other communities of race, ethnicity, gender and sexual preferences, this is a traumatic experience.   Across the country, many are gathering to support and grieve together.

This Saturday, the focus of our Thanksgiving meal will be on the support to each other that we all need at this time of immense challenge.   The theme “Gobble for Unity” is still the same, but now is even more important.

We have many RSVPs so far and a delicious meal planned.  Please, if you have not yet,  send an email to secretary@chicagodeafblind.org to confirm that you are coming, if you are bringing any foods, and also if you need a ride from Metra station.

We also will need more SSP volunteers. We have many now but we anticipate needing more due to this news.   If anyone wishes to be an SSP and join us in our community support and process, please do contact secretary@chicagodeafblind.org.


THank you,

Bryen M Yunashko — President, LeCOBDA

Gobble For Unity!

What an amazing 2016 so far.  But 2016 not over yet. Our Chicago Area DeafBlind Forum⊆ was a-m-a-z-i-n-g.   So much ove and support for each other.  This is just the beginning.

November 12 is our next LeCOBDA gathering.    This is an important meeting, because we will have lawyers from Access Living come to hear your concerns about paratransit and public transportation issues.  You all spoke out about it at the Forum and now people are listening to us.  This is positive move forward!

After the Paratransit Forum, we will celebrate with a special Thanksgiving meal called “Gobble for Unity!”   Why?  Because we want to remember the past and move for the future together.   In the old days, did you know LeCOBDA members would always potluck their meetings?   That is UNITY!   We want to remind you all that community means unity.

The officers of LeCOBDA will be making many turkeys and bring to the meeting.  We will CARVE the turkeys like a real thanksgiving dinner at our meeting.  Who will fight for wishbone?  We are asking you all to volunteer to bring your favorite side dishes, appetizers, or desserts.     Isn’t that fun?

Also, remember, at the forum, we said we want to support family and children.  The meetings are open and welcome to everyone, including your families and your children. We will have some activities to have fun times for the children.  So bring them with you.

We need to know how many turkeys we must make.  So please send an email to secretary@chicagodeafblind.org.   Let our secretary, Suzanne Salerno know how many people you will bring and what kind of dishes you want to bring.

The event starts at 11 a.m. and ends at 3 p.m.   Please arrange to have your transportation meet you after 3 p.m.   Address is Chicago Lighthouse at 1850 W. Roosevelt Road, in Chicago, IL.

Let’s Gobble!!!

The Officers of LeCOBDA

Don’t Forget to Vote!

We want to remind you that it is important to vote on or before November 8th.  You have right to be part of American Democracy!  Your vote means you are telling government what you want.

You can vote on Tuesday, November 8 at your official polling location near your home, or you can vote early.  Early voting can be through mail-in ballot or at special locations such as libraries.    Make sure you learn who are the candidates.  We are not just voting for President and Vice President.  We are also voting for Senator and House of Representatives and many important local elections.

Don’t know who is on your ballot?   Want to know where to go to vote?  Want to make sure you are registered to vote?  You can do all that by visiting www.vote411.com.   (Note:  This website is not tested yet for braille accessibility.  If you need assistance, you may contact one of us at LeCOBDA and we can get the information and e-mail to you. Just send an email to info@chcicagodeafblind.org and tell us your mailing address so we can match to your voting location.)


Be a proud DeaefBlind American!   Vote!

Stay tuned for more exciting news from LeCOBDA coming VERY soon!

The LeCOBDA Officers

Committee Members Needed

Let’s continue the momentum from the Forum!

We are seeking volunteers to join new committees.

Do you enjoy planning get togethers?
Join the Events Committee and start organizing the next gathering.

Interested in shaping the future of our organization?
Join the Bylaws Committee.

Please email Bryen hello@bryen.com and Jason mrjsin@gmail.com with the committee you are interested in.

Thank You!


The DeafBlind Forum was AMAZING!

The first ever Chicago DeafBlind Forum was well attended! There were 77 participants in the DeafBlind session and 97 participants in the Ally session. Here is a recap of all the discussion topics.

DeafBlind Needs and Concerns:
Change name of LeCOBDA
Peer/Support Group
Family/Parent/Children Support Group
Family of DeafBlind Outreach
Communication: access; sign language classes; ProTactile workshops
SSP (Support Service Provider) volunteer programs
DeafBlind member workshops
Education accessibility
Transportation: needs drastic improvement; discount card; communication card
DeafBlind Committee volunteers needed

Ally Session Discussion Topics:
“LeCOBDA” establishing independence from Chicago Lighthouse by forming non-profit 501(c)3 organization (under new name)
We become point of contact for DeafBlind issues
Create peer support groups of DeafBlind in different locations
Create mental health advocacy group
Train Interpreters to work with DeafBlind
Establish state standards for DeafBlind Interpreting
Create SSP Registry
Develop SSP as recognized profession
Create sign language classes accessible to blind
Transportation- need text capabilities; send paratransit complaints to  passenger.services@pacebus.com
Collaborate with organizations for improved access
Advisory Committees need DeafBlind representation
Upcoming legislation on certified DeafBlind Intervenors for children at school
Develop identification card for DeafBlind

Our discussions will continue. We want to know your opinions.
Please contact a board member to join a committee!

The LeCOBDA Officers


Support Service Provider (SSP) Training for working with DeafBlind Consumers

Support Service Provider (SSP) Training for working with DeafBlind Consumers

In this workshop, the participant will embark on a 3-hour journey learning the significance of the Support Service Provider (SSP) role and become an effective resource tool in empowering DeafBlind individuals to live successful and independent lives. Come, close your eyes, open your mind, and experience a world of awareness through touch as we go through multiple hands-on activities to make you an effective SSP and a valuable ally to DeafBlind individuals. This course will also include ProTactile strategies for enhancing the SSP experience for both the consumer and the provider.

September 28, 2016
Moraine Valley Community College,
Palos Hills, IL
6-9 pm

September 29, 2016
Columbia College
Chicago, IL
6-9 pm

$15 OR Free with commitment to
volunteer at October 1 Forum and
future LeCOBDA events.

That’s .3 CEUs absolutely FREE!
Email Bryen M Yunashko
hello@bryen.com to register

Bryen M Yunashko, a national DeafBlind advocate from Chicago, was born Deaf. It was when he was 26 that he discovered that he also had Usher Syndrome. Now nearly completely blind, he happily relies on tactile ASL. Bryen has long advocated in many aspects of both the Deaf and DeafBlind communities on everything from captioning to accessibility. With a strong focus today on DeafBlind social issues and advocacy, he travels extensively providing trainings and workshops, particularly on vidism and ProTactile techniques. In addition to serving on numerous national and statewide legislative committees and task forces, Bryen owns Access256 Productions, LLC, providing consulting, presentations and workshops, advocacy and self-advocacy training, mentoring, and Braille printing services. He makes his home in Chicago.


Details on upcoming Chicago Area DeafBlind Forum

Only a few weeks left before the biggest event ever to hit the Chicago DeafBlind community…  our first ever historical DeafBlind Forum!   We can’t wait.  It is so exciting and already many allies and organizations will be there.

It is so important for you, as DeafBlind person, to be at this forum.  Express your concerns, your ideas, your wishes, your priorities, everything.  This is about YOU!   This is about empowerment!

You are not required to RSVP, but if you can let us know, it will be very helpful for planning purposes.  Send an email to hello@bryen.com to let us know if you have any questions or if you will go.

Here are important details for you and your transportation planning.

When:  Saturday, October 1, 2016

Where:  Columbia College, 618 S. Michigan Avenue, 2nd Floor, Chicago, IL  on Stage Two.

Time:  10 a.m. to 4 p.m.  Lunch included  (read more below)

The forum will begin at 10 a.m. sharp.  Please arrive before to give enough time to set up your SSP and interpreters.  We will open doors at 9 a.m.

From 10 a.m. to 12 p.m., this will be DeafBlind ONLY with their SSPs.  No hearing or sighted people allowed. This is our own private discussion group.

From 12 p.m. to 1:15 p.m.  we will have lunch break.  There are many nearby restaurants you can pick.  You can go with your SSPs or in groups.  Every DeafBlind person and SSP will be given $10 to spend anywhere.  Bring more cash if you want a bigger lunch!   Smile.

1:30 p.m. to 4:00 p.m.   We will have the Allies Session. This is where many organizations and the public will come and hear what we discussed about in the morning and we will begin to plan ways to work together and be a more effective and stronger organization.  We already will see many guests from universities, colleges, organizations, blind groups, deaf groups, government agencies, etc.

It is important for you to be there. Please make every effort to come to this Forum.  We need your voices!

Please prepare transportation to arrive around 9:30 a.m. and leave around 4:15 to 4:30 p.m.

Thank you,

LeCOBDA Officers

Farmers Market at Printers Row

The Printers Row Farmers Market, at 634 South Dearborn, features a variety of fresh fruits and vegetables, fresh baked goods and colorful flowers and plants.

Bring cash to buy items and your own bag to use. This market also accepts the LINK card.

Printers Row Farmers Market

Saturday, September 10

10am – 1pm

This Farmers Market is at the Printers Row Park on South Dearborn between Harrison and Polk.

The Harrison Red Line stop is two blocks away at State & Harrison.
Please let us know if you require an SSP to meet you at 10:00 am.
Questions can be directed to Jason at mrjsin@gmail.com.

Volunteers, please let us know if you can join us.


President’s Message: End of Summer

Dear DeafBlind Community Members and Allies:


We are now entering the final weekend of summer before Labor Day weekend, and it has been quite a summer for many of us.  So many things going on everywhere, it seems like one of the busiest summers ever for some of us.   And LeCOBDA has been busy as well.    Let’s review:

In June, members of LeCOBDA gathered at the Thompson Center in Downtown Chicago for a candlelight vigil to demand that the state legislature and governor pass a budget so that important services affecting many communities do not shut down.  There were many different groups at this event, and LeCOBDA and the DeaefBlind community was one of the biggeer groups.   Awesome!   This was important because it showed that you all care and you want to see positive changes!

Then in July, we gathered again to join the Disability Pride Parade.  Vice President Jason Salerno made this amazing tactile banner to represent us, it was a large hand  as a fist holding a large cane.  It had to be carried by four people in the parade   Darrell Washington led us all in shouting “DeafBlind Rocks!  DeafBlind Rocks!”   About 30 people showed up.   As President, I want to tell you that I was so proud of all of you.  And Secretary Suzanne Salerno  did a lot of work helping to organize the event and the picnic afterward.   We had this wonderful private picnic at Millenium Park after the parade to celebrate and enjoy ourselves.

This represents a change for LeCOBDA.  We will become more actively involved in the community and show more leadership and involvement.  You are important.

The officers of LeCOBDA also made an important decision.  Beginning in 2017, we will no longer have closed months.  In the past, LeCOBDA did not meet in January, June or August.  We believe this is wrong and we are going to change that.  We are DeafBlind 12 months a year, it does not stop for 3 months!   We have the right and should get together and socialize and discuss important issues together.  No one should be stuck left alone during important holiday months.

There were also some tough moments that happened this summer.  Mindy Joy Mayer, who has been a huge activist in the LeCOBDA activities over the years, lost her mother to illness this summer.    Officers went to Shiva (a Jewish remembrance) to represent LeCOBDA and join Mindy and her family in prayer.

Then we lost another beloved member, Jerrie Lawhorn.  Jerrie was one of the founders of LeCOBDA 38 years ago and was treasurer for all those years until she stepped down in May. Less than 2 months later.  Jerrie passed away at the age of 99 and a half years young.    She has been sorely missed by many people around the country and within our own community.  Jerrie was laid to rest this weekend on August 27th at Glenwood Cemetery after a beautiful and moving service filled with song, poetry, speeches, and memories.  A LeCOBDA officer was present to represent the organization in grateful thanks to Jerrie for her many years of contributions.

Looking Ahead:

The Fall season is almost here and that means we have lots of new activities and meetings to plan.  Soon, it will be holidays and we will have our wonderful annual gatherings.

On September 10, Jason Salerno will organize an outing for those of you who would like to go to Farmer’s Market.  Jason will email you all with the details very soon this coming week about where to meet and what time.

On October 1, we will be hosting an historic event. The first ever Chicagoland DeafBLind Forum.  This is something you all need to attend.  It will be held at Columbia College on Saturday October 1 from 10 a.m. to 4 p.m.   Please mark your calendars for this super important event that needs your participation.   We will be sending more updates about the Forum after Labor Day holiday.

All of this is just the beginning.  The officers of LeCOBDA are in agreement that we must do more to empower our members, to get our members more involved, and to make our organization strong, healthy, financially secure, and bold!   We are going to build new relationships and allyships around the region.   We will become a modern organiztion that fights for your needs and still provides the important and enjoyable socialization time.

The beginning is HERE!


Bryen M Yunashko – President of LeCOBDA